This past Saturday, my partner and I attended a prom in support of Huntington’s Disease. It was a lot of fun. We both wore identical tuxes with different color bow ties. Mine was pink, his was purple. I will freely admit that I am a horrible dancer but managed not to step on any toes or feet last night. No one needed qualified medical help because of me!
Huntington’s Disease is a genetic disorder where nerve cells slowly degenerate. Because of the slow progression of the disease, families’ lives are affected for decades and the emotional toll can be staggering.
The prom was organized by my friend at the gym, Shana Martin. She is very active in the Wisconsin chapter of HDSA. Her mother has HD but was brought out to the event by a special bus. I had the honor of meeting her. It was the first date she and her husband had been on in over ten years. Truly a special evening for all who attended!
My friends, Shana Martin and Peter Verstegen, at the Re-Prom
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